Effective Date: May 7, 2026

RARE Kids Foundation (“RARE Kids,” “Foundation,” “we,” “our,” or “us”) respects your privacy and is committed to protecting the personal information you provide to us. This Privacy Statement explains how we collect, use, share, store, and protect information obtained through our websites, applications, events, fundraising campaigns, communications, and related services (collectively, the “Services”). By accessing or using our Services, you acknowledge and consent to the practices described in this Privacy Statement.

1. INFORMATION WE COLLECT

We may collect personal information you voluntarily provide to us, including your name, email address, mailing address, phone number, donation information, event registrations, volunteer applications, stories, testimonials, photographs, videos, and other content submitted through our Services. We may also automatically collect certain technical and usage information, including IP address, browser type, device identifiers, operating system, referral URLs, website interactions, and analytics data.

2. HOW WE USE INFORMATION

We may use collected information to: • Operate and improve our Services • Process donations and transactions • Respond to inquiries and requests • Communicate with supporters and donors • Send newsletters, updates, and fundraising communications • Administer events and campaigns • Share awareness initiatives and advocacy efforts • Analyze and improve user engagement • Protect the security and integrity of our Services • Comply with legal obligations

3. DONATIONS AND PAYMENT PROCESSING

Donations may be processed through secure third-party payment processors, including Stripe, PayPal, or other authorized vendors. RARE Kids Foundation does not directly store complete payment card information on our servers. Third-party processors maintain their own privacy and security policies governing payment information.

4. COOKIES AND TRACKING TECHNOLOGIES

Our Services may use cookies, web beacons, analytics tools, pixels, and similar tracking technologies to improve functionality, personalize experiences, measure engagement, analyze traffic, and support fundraising and outreach efforts. Users may manage cookie preferences through browser settings, although disabling cookies may affect functionality.

5. HOW WE SHARE INFORMATION

RARE Kids Foundation does not sell personal information. We may share information with: • Payment processors and financial service providers • Technology and hosting vendors • Email and communications platforms • Event and campaign service providers • Research or healthcare collaborators where consent is provided • Legal or regulatory authorities where required by law • Professional advisors, auditors, or insurers where reasonably necessary

6. STORIES, MEDIA, AND COMMUNITY CONTENT

If you submit stories, testimonials, photographs, videos, or other materials to RARE Kids Foundation, you grant us permission to use such content in connection with our mission, awareness campaigns, fundraising initiatives, publications, social media, educational materials, and organizational communications. You represent that you have obtained appropriate permissions and consents for submitted content, including from parents or guardians for minors.

7. DATA SECURITY

RARE Kids Foundation maintains commercially reasonable administrative, technical, and organizational safeguards designed to protect personal information from unauthorized access, disclosure, misuse, or destruction. However, no method of transmission or storage over the internet can be guaranteed to be completely secure.

8. DATA RETENTION

We retain personal information for as long as reasonably necessary to fulfill operational, legal, financial, regulatory, archival, and mission-related purposes.

9. CHILDREN’S PRIVACY

RARE Kids Foundation recognizes the sensitive nature of pediatric health and family information. We do not knowingly collect personal information directly from children under the age of 13 without appropriate parental or guardian consent. Parents and guardians are encouraged to supervise children’s use of online services.

10. YOUR PRIVACY RIGHTS

Depending on applicable law, you may have rights to: • Access personal information • Correct or update information • Request deletion of information • Restrict or object to certain processing • Withdraw consent where applicable • Opt out of marketing communications Requests may be submitted using the contact information below.

11. THIRD-PARTY WEBSITES

Our Services may contain links to third-party websites, including hospitals, research institutions, social media platforms, sponsors, and community partners. RARE Kids Foundation is not responsible for the privacy, security, or content practices of third-party websites.

12. INTERNATIONAL USERS

If you access our Services from outside the United States, you acknowledge that your information may be transferred to, stored, and processed in the United States.

13. CHANGES TO THIS PRIVACY STATEMENT

RARE Kids Foundation reserves the right to update or modify this Privacy Statement at any time. Changes become effective immediately upon posting to our Services. Continued use of the Services following posted changes constitutes acceptance of the revised Privacy Statement.

14. CONTACT INFORMATION

RARE Kids Foundation 36 Russ Street, 3rd Floor #962 Hartford, Connecticut 06106 United States Email: info@rarekidsfoundation.org